My Mom Died a Year Ago Today

It was a year ago today.

August 12th, 2015.

I remember walking the fluorescent corridors of the hospital making my way towards my mom’s room. Her friends lining the path with reverent postures and bowed heads. It was clear that my mom had passed away.

I wasn’t with her because I had been down in the chapel with a few of my friends praying. There is a twinge of regret not being there by her side, but honestly, she didn’t want any of us in there with her. A friend’s mom wrote this to me recently and I believe it to be true.

“It’s so like a mom to go when no one is there. I think our love for our people ties us so completely to this earth. Our love for our people is our heaven on earth – so that makes so much sense.”

Moms give their lives away to their family. My mom gave her life away to us. Her heaven on earth was demonstrating the love of God through her love towards others. Us not being in the room seemingly allowed her to leave on her terms, and like a typical mom, not put any burden on us in the process.

I miss her. I miss her so much. There is not a day that has passed over the last 365 days where I haven’t thought about my mom, even if just for a moment.

There are days that I miss her so terribly that it physically hurts.

There are days the hollowness inside of me feels so cavernous that one could never reach the bottom.

There are days that I fear I won’t remember enough of who she was and that she’ll slip from my memory.

I was at a funeral recently and thought I was going to be fine. Actually, I didn’t think about it all because I wanted to be there for my friend. However, as soon as the ceremony started emotion overtook me. I’m a stereotypical man though so I stiffened up, stuffed the emotion down – which is what every counselor will tell you… to never do – and then titled my head back as if I was balancing something on my head to keep the tears from rolling out of my eyes that had already welled up. I’m sure I looked completely ridiculous.

I write all these rambling reflections to say that I’m not sure what I’m supposed to say. I’m not sure what I’m supposed to feel. I believe it’s that way because there is no blueprint for grief. It’s a living, breathing map that is unique for each person. A map that only has the terrain of where you have walked previously, but blank on the landscape you are headed towards. It’s that way because the landscape of grief is ever shifting before we solidify it with a step forward.

Now, I’m not sure what I’m supposed to say or feel, or how to navigate the process that grief brings, but I can tell you a few things that I know to be true.

Death doesn’t have the final word. Death, as devastating as it is, has no power over you if you know Jesus. In Christ, we can look at death and ask it with divine confidence where its victory and sting have gone.

The apostle Paul refers to this as a mystery (1 Cor. 15:51). The mystery that in a moment, in a twinkling of an eye, the dead shall be raised imperishable.

Not only is it a mystery, but there is a great victory at the hands of our Savior. When the perishable puts on the imperishable, and the mortal puts on immortality we can say that death has been swallowed up in victory. For we know that the sting of death is sin and the power of sin is the law, but thanks be to God who gives us the victory through our Lord Jesus Christ (1 Cor. 15:57).

My mom is in heaven cancer free, pain free and sin free just partying it up with the great cloud of witnesses. As I’ve always written, I can’t wait to join her at the Eastern gate. She owes me a salsa dance and a trip to New York that I promised I would take her on that I never got the chance to do.

So what do we do now? Those of us on this side of eternity. Those of us still marred in sin, brokenness and imperfections.

Paul gives us the answer after painting for us the beauty of the mystery and victory of Christ over death –

Therefore, my beloved brothers, be steadfast, immovable, always abounding in the work of the Lord, knowing that in the Lord your labor is not in vain. (1 Cor. 15:58).

We must be steadfast, immovable and abounding in the work of the Lord. Steadfast and standing firm in our belief in the gospel. Immovable from our hope that Christ has been victorious and we shall be raised incorruptible and immortal. Abounding in the work of the Lord by loving the world around us by demonstrating and declaring the great news of Jesus.

So when death comes your way and I promise it will. Grieve. It’s sad. It’s the result of the fallen nature of man. Yet, don’t grieve as those without hope. Stare death in the face full of faith and triumphant joy knowing that a great victory has already been won for you.

The grieving in this life is but momentary my friends. It’s preparing an eternal weight of glory beyond all comparison for you. Be hopeful.

So today, I miss my mom immensely, but I don’t grieve without hope. I’m going to go out and live steadfast, immovable and abound in kingdom work. You should too. However, soon and very soon, death will come for me. I will not be caught off guard though, but I will be ready for him whether he comes today or in 60 years. I’ll be excited to join my mom and all the saints before her.

We’ll see each other. Hug. Cry. Laugh. Then sit down for a heavenly margarita (can I get an amen?) and celebrate the night away, including that dance she owes me.

Love and miss you mama.

 

 

 

 

The Last Day to Help Me Name a School

Alright party people.

First off, thank you so much for the already overwhelming response of people who have voted for my mom. I can not say thank you enough!

Second, today is the deadline for helping me name the newest Georgetown school facility after my mom. So if you haven’t voted make sure you jump on and do so today.

Here’s a reminder of the steps.

Step One

Go to this link – http://tinyurl.com/gisdms4name

Step Two

Fill out all the information.

  1. School Name You Are Submitting – Molly Frazier Middle School
  2. Identify the type of name – A person who has made significant contribution to education in Georgetown ISD.
  3. 500 word descriptive essay – (I’ve included my wife’s essay below to help give some direction, but speak from the heart).
  4. My dad’s contact information. Email me at scott.c.frazier@gmail.com if you want this information and I’ll send it to you.
  5. Your information.

Step Three

Spread the word! Make phone calls, text, email and utilize every social media platform available to get the word out. We need as much support as we can get!

Thank you guys for joining me on this effort. As I wrote in my previous post, I don’t feel like you have to have a school named after you to leave an impact on this world, my mom has already done that, but I do believe she is absolutely worthy of it.

Below is the essay my wife wrote and it truly embodies all that my mom’s life represented.

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My mother in-law, Molly Frazier, made an incredibly significant contribution to education in Georgetown ISD. She served with GISD for 31 years. Six of those years she was a coach and teacher at GHS before becoming a PE teacher at Annie Purl Elementary.

From the moment I met her in 2003, Molly always shared with her words and her life how much she cared about her students and co-workers. She would go to the greatest effort to make her students laugh, learn, be included and grow. I will never forget all she gave to different events to draw joy out of her students and create an environment for any child to actually feel welcomed and able to be themselves. She was good at that, making others feel more free to be them. She spoke life into people.

She not only invested into the students of Georgetown but also other GISD staff around her. I remember Molly always telling me about her co-workers. She spoke with such positivity about each person, choosing to focus on others’ strengths and how to draw it out of them. She sought out others outside of the “formal” work week. Even after her diagnosis of cancer and facing the trials that come along with treatment, she continued to pursue these relationships. She would meet other teachers for lunches, dinners, coffees, etc. She truly cared about them, not dismissing their life or challenges when facing her own.

Personally, knowing Molly as the mother of my husband and as someone who came to be a dear, dear friend was my favorite part of Molly. I learned who she was as a person. She authentically cared for others, wanted to know about them, wanted growth and good for them. She made me laugh, challenged me, encouraged me and served me. I’ve never met someone who gave and gave as she did to our family in such a challenging time for herself. Our daughter spent almost 5 months in the NICU when she was first born. While my husband was at work, Molly would come sit with me or sit with Davy so I could take a moment away. She sat through difficult moments, procedures and surgeries with us, by our side no matter how much it was also paining her to see it. When Davy came home from the hospital and Scott returned to work, Molly was there for me when no one else could be. She cleaned, cooked, ran errands, made me laugh, cleaned medical supplies and more, all the while she was in her last months of life.

She never spoke a negative word, never complained, fought for joy, fought for joy for others, loved deeply and cared contagiously. Are these not descriptions of someone we want the future generation to look to as an example? This is why I want to see a new school named in her honor. She invested deeply, genuinely, thoughtfully and joyfully into her students, fellow co-workers and community at large.

OCH 16 Days In!

We have been in Dallas for the intensive feeding program at OCH now for 16 days!

In that amount of time Davy has attended 12 OT sessions, 9 PT sessions, 12 speech therapy sessions and 63 feeding sessions! Can you believe this girl? All on limited sleep due to the rigorous schedule but with a smile on her face and a big cheesy grin. She continues to amaze me. God has given this girl such strength, fight, and grace. For you to see her big cheese, here is a snapshot of us celebrating her turning two while here (another blog to come later!)

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Swim Time!

Progress Update

Davy has had a big six days since our last update! We can hardly keep family informed with her progress with our busy days. We would have like to have shared more on Monday.

I (Chelsea) have one meeting with her dietician early in the week and another meeting with her entire team on Thursday afternoons. So far, these meetings direct changes in Davy’s feeding as we discuss her calorie and fluid intake.

Last we shared we were decreasing the amount of nutrition Davy receives through her g-tube by 25%. On Monday, her dietitian gave us the go to decrease this to 50%!!! Yes, half of what she was taking! I learned our girl had been eating more than 50% of her calories by mouth for three+ days!

Now, bigger news. During our Thursday meeting today, they suggested she start taking only 33% of her daily nutritional need by the g-tube! What??? Where are we? If I wasn’t seeing it with my own eyes I couldn’t comprehend how this would be possible in only 16 days but here we are!

To share some details for those who like them (skip ahead if you want, it won’t hurt our feelings!), Davy came in taking 890 calories through her g-tube. In the past three days she has taken over 650! Technically, we could probably drop her g-tube feeds even more but we are playing it cautious. This means we are down to the last 250 calories!

Please continue to join us in praying!

  • Miraculous works continued. Please join us in praying for Davy to not be using her g-tube for food or drink by the time we leave (in two weeks)
  • Dallas team. For God to give the team in Dallas wisdom and knowledge to continue help and work with Davy best.
  • Witness. I have started to form some really sweet relationships here. Please be praying for God to be seen and made known.
  • Our marriage. We are on the last half of time apart as a family. Though we believe we are through the most challenging part we don’t want to stop praying for God’s grace and help for us as a unit and couple these last two weeks.
  • Chelsea (me). Continued stamina. The schedule is intense and time alone is really limited in time and space. Please be praying I don’t get sick from exhaustion and would fight for time with the Lord often and daily.

 

A Letter to Davy on Her Second Birthday

My Davy girl,

Happy second birthday beautiful. I so wish I could be there with you to give you a big squeeze, get a million Davy kisses and tell you how much I love you. Due to your last minute admission at Our Children’s House we are unfortunately apart today from one another because of prior commitments, but know that was not the intention. I’m at a youth camp, that you and mom were supposed to be at with me, getting to preach the best news in the world – the gospel – to a group of students. Your mom and I collectively decided though that it would be best for me to honor my commitment to preach and for you to get the benefit of therapy at OCH.

So know that I’m so sorry that I’m not there today, but I promise I will make it up to you in snuggles, ice cream and daddy-daughter dates! However, I will say this, I’m looking forward to preaching camps in the future and bringing you on these crazy adventures with me. You’re going to love it and we’re going to have a lot of fun together.

What can I say about the last year?

I mean you’re two years old! Two years ago I wasn’t even sure I was going to get the gift of being your daddy, and now I have the most precious little girl (yes, I’m talking about you!) who is not so little any more.

So much has happened this past year. Eventful would be an accurate description.

Shortly after your first birthday your “Immy”, my mom, passed away from her battle with cancer. Or more accurately, as your Immy would probably say, God took her home to heaven before she had time to beat it herself. Davy girl you have to know that your Immy adored you to no end. After talking with Papa Randy, we have both come to the conclusion that her love for Jesus and her love for you were her driving motivations near the end.

I know it’s sad not having her right here in the flesh cheering you on, I’m sad too, but don’t worry because we’ll make sure her memory stays alive. We’ll tell you stories, share her wisdom with you and you can ask Papa all the questions you want. Also, you don’t know it yet, but you’ve got a lot of Molly Frazier in your personality. I’m excited, and a little terrified, to see how that turns out!

One thing about your Immy is that she loved motivational quotes. She used to put them all over my room! A quote she would tell you is to, “fight for joy, make a statement, and live intently.” She would tell you that in Christ you can find joy (John 15:11), but you’ll have to fight for it because the world will pull you in a million directions. So fight for joy. She would tell you to make a statement with your life and not just settle for mediocrity. Christ came so that you may have life and life abundantly (John 10:10). So make a statement. Lastly, she would say live intently every single day. We have no idea when our last day on earth will be, so we must live with gospel intentionality and not waste any moments. So live intently Davy girl.

This year you also had gtube surgery, went back to the hospital for at least another 60 days collectively (we finally stopped counting!), including a trip on New Years and your mom’s birthday, you got RSV, got off the feeding pump and got admitted to OCH where you are right now with your mom. Davy, there is never a dull moment with you and we wouldn’t change it for the world. Like I said, it was an eventful second year of life.

As I reflected on this past year of your life there are three overarching themes that engraved themselves into my mind.

The first, is the concept of waiting on the Lord.

I wrote these words earlier this year:

To wait on the Lord means to fight to be content with the season of life he has you in through His strength (Phil. 4:11-13), to find joy in the midst of His presence instead of your circumstances (Ps. 16:11), and to trust His wisdom (Rom. 11:33).

We can be absolutely certain that whatever season of life we are in, we are there with divine purpose. God is writing our story – even the chapters of affliction, trial and challenges – for our good, our growth and his glory.

The writer of Lamentations shows us the way to wait on the Lord – “The LORD is good to those who wait for Him, To the person who seeks Him.” (Lam. 3:25).

To wait we must seek.

Davy girl your life has gone so differently than we would have ever scripted for you. In life you’re going to have to learn that God’s timing is not our timing. His ways are higher than our ways. Yet, you can always, always, always trust that God is writing a better story than you could ever write for yourself. You just have to remember in the midst of waiting to head the wisdom of Lamentations – to wait we must seek. Even when life is going the way you thought it should go, or the timing is different than the timing you want, always remember to seek the Lord with all heart, mind and soul knowing that he is for you.

The second theme is the theme of perseverance.

Davy, you have done so much this year. You have been in and out of the hospital. You have been battling between sickness and health. You have also been in physical, speech and occupational therapy to overcome some of your setbacks.

What I have seen in you and your mom has been something incredible – perseverance. The ability to get back up even when you’ve been knocked down. The strength to say, “I will try again tomorrow”. James writes in the Scripture that when our faith gets tested in this life it’s so that  perseverance is produced (James 1:3).

Perseverance is a beautiful quality to possess. Maya Angelou, an American poet and civil right activist said this about perseverance. “You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it.”

Davy, I have loved watching what has risen from within your mom and you. It’s a strength that is deeper than the physical, it’s a spiritual strength. I have watched your mom become someone incredible. You must know this about her. She is an incredible woman of God worthy of being respected, honored and spoken of highly at the city gates.

I have also loved what I see rising from within you little one. A feisty, fiery personality that is theatrical, curious and fun. I can not wait to see more of this side of you as the years continue onward.

Lastly, you just have to know that I absolutely love being your dad and I am so proud of you.

Davy, your life hasn’t been easy and it hasn’t been easy watching you endure many moments of it from my perspective. At times it has been overwhelmingly heartbreaking. It was heartbreaking having to hold you in my arms as you cried and screamed while the doctors were poking you with needles. It was devastating to my soul to have to readmit you into the hospital over and over again. It’s been tough watching you have to battle in therapy to do most kids do naturally.

At the same time, I have been blown away by you as a person. Your ability to bounce back after being stuck 6 times as the medical team attempted an IV in your scar tissued hands. After that you stopped crying, looked at me directly in the eyes smiled and then laid your head on my shoulder. In the hospital you used your charming personality to win over ever person who came in contact with you and brighten their day. In therapy I witness you conquer mountains that only you can conquer…and you do it. You are amazing Davy and I’m beyond proud of you and so proud to be called your dad.

Lastly, sweet girl, I want to end with a verse that has been my support this past year.

For the righteous will never be moved; he will be remembered forever. He is not afraid of bad news; his heart is firm, trusting in the Lord. His heart is steady; he will not be afraid, until he looks in triumph on his adversaries. – Psalm 112:6-8

In Christ, we will never be moved and will be remembered forever. We don’t have to be afraid of bad news, our hearts remain firm while trusting in the Lord and they will beat steady. This is good news.

Davy girl, I love you and I’m so proud of you. Remember to fight for joy, make a statement and live intently every day. Love you sweet girl and keep living DavyStrong.

Love,

Dad

 

Help Me Name A School

Help me name a school.

Well, more accurately, help me get a school named after my mom.

There is a new Georgetown ISD Middle School scheduled to open in the fall of 2017 and they have opened up nominations for the name. This is where you come in.

Step One

Go to this link – https://www.surveymonkey.com/r/GISDMS4Name

Step Two

Fill out all the information.

  1. School Name You Are Submitting – Frazier Middle School
  2. Identify the type of name – A person who has made significant contribution to education in Georgetown ISD 
  3. 500 word descriptive essay – (I’ve included my essay below to help give some direction, but speak from the heart).
  4. My dad’s contact information. Email me at scott.c.frazier@gmail.com if you want this information and I’ll send it to you.
  5. Your information.

Step Three

Spread the word! Make phone calls, text, email and utilize every social media platform available to get the word out. We need as much support as we can get!

Thank you guys for joining me on this effort. I don’t feel like you have to have a school named after you to leave an impact on this world, my mom has already done that, but I do believe she is absolutely worthy of it.

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Frazier Middle School

My mom, known as Coach Frazier to most who knew her, served with GISD for 31 years. She did not start her career at Georgetown, but as Jack Frost used to say, “she got here as fast as she could.” She was a coach and teacher at GHS for 6 years before becoming a PE teacher at Annie Purl Elementary. I watched her work late into the night perfecting a dance she would teach students, I heard her counsel my friends who were once in her PE class, and I saw her take younger teachers under her wing to help them find their voice.

Not only did my mom invest professionally into Georgetown, but also invested relationally. It seemed as if she knew everyone. One could tell that simply by how long it took my family to get out of a store or restaurant because my mom would stop to talk to everyone. She didn’t just know everyone, but deeply cared for those she knew. One of her former volleyball players sent this to me after she passed away. “She fought for me when I wanted to be a better volleyball player. She taught me how to have gumption! She taught me how to dare greatly and be brave! She taught me perseverance and resilience! And grace. She taught me how to believe in myself when I lost. She taught me how to try again! She knew these things well because she was them herself. She taught and taught and poured into people. She poured and poured and poured. Into me, and y’all, and everyone she met! She gave wholeheartedly of herself to the world. I love her for that. I love her feisty, gritty courage. I don’t think I’ve ever seen courage like that in anyone else.” That’s a person worthy of having a school named after them.

It wasn’t just about her professional life or relational care for others, but also about the type of life my mom lived. She was passionate, contagiously joyful and a woman of faith who loved deeply. I watched her battle cancer with grace, perseverance and courage. All the while continuing to care for others around her. Another one of her students wrote this to me, “Molly was one of those special kinds of people – that made others feel loved and important, even if she didn’t know them that well… when I would see her out and about, she made me feel like we had a special connection. She made me feel important. This was the best aspect of mom and the part I miss most. I would love to see the new school named after someone who helped build Georgetown, not simply through a pen and a check book, but through hard work, relationships and a life well lived. Those qualities are the true brick and mortar of a community. This is why my mom is a worthy candidate deserving of having this school named in her honor.

 

 

OCH Update

Here’s an update from Chelsea on her and Davy’s time at OCH.

Today marks 10 days since Davy and I arrived at Our Children’s House for the intensive feeding program. Almost everything has gone smoothly and really well. Davy has fully adjusted to the busy schedule. I am learning how to use my time apart from her and with her. We have figured out laundry, meals, how to share a room and run errands, met new friends and I have officially returned to the college days of community showers and learned the nearest coffee shops.

Honestly, I couldn’t speak higher of our time here. The staff is so hospitable, considerate, through, thoughtful, understanding, supportive and more. Our stay holds the normal difficulties of any hospital (loud sounds when napping, interruptions, not being on your own schedule, etc.) but overall it’s been good here.

A Day In Davy’s Shoes

To give you a glimpse into our day I have shared Davy’s schedule below:

9AM – Oral Feed

9:30AM – Gtube Feed

10AM – Occupational Therapy

10:30AM – Physical Therapy

11AM – Speech therapy

12P – Oral Feed

12:30P – Gtube Feed

3P – Oral Feed

4P – Gtube Feed

6P – Oral Feed

7:30P – Gtube Feed

It was quite a transition but now it feels like our new normal.  As you can see Davy is having more exposure to food and being pressed more than ever to take food by mouth. The practice they are using on her is simple but used multiple times a day everyday has shown it works.

Davy sits in a high chair with the same speech therapist or feeding tech in the same room everyday. I am not in the room with her (yet) but can view the session from another room with a window that looks like a mirror to Davy. They allow her to play with a toy or watch something on an iPad while they feed her. If she refuses or gets distracted they simply tell her they will take it away if she doesn’t take her drink/bite. If she takes the drink/bite she continues with what she was doing. If she doesn’t take her drink/bite they remove the toy or turn off the iPad and tell her again to take her bite to have them back. Simple right? But over and over again for a small toddler and it’s working, at least for our girl.

Davy’s Progress

We could see a small change in just the first day. With small progress in four sessions, over a number of days, with a regimented schedule our girl is now taking more by mouth than she has ever before. Today, I met with her team for a weekly discussion and evaluation of her progress. They are extremely pleased with her response to the therapy. They explained this more in full, which held really encouraging insight. However, the most encouraging part we wanted to share with you!

As of this afternoon, we are decreasing the amount of nutrition Davy receives through her g-tube by 25%! The reason being that she is taking that many calories by mouth now! For perspective, we arrived with Davy having taken maybe 5-10 mL (1/6 – 1/3 of an ounce) of fluid by mouth in one sitting. Today, she drank almost 3 ounces in one sitting AND ate more than an ounce of greek yogurt in the same sitting!

This is truly miraculous for Scott and I. It’s possible we will bring our girl back to Austin not using her g-tube! Can you imagine??? Tears are welling up in my eyes now as I even think of the possibility. We don’t think it an accident or mere chance we are here and God is moving at this time. We think it’s His complete grace, wisdom and kindness. Scott and I started praying for Davy to eat fully by mouth by her 2nd birthday 360 days ago, when she turned 1. Today, we are 5 days from her 2nd birthday.

We believe He listens to our prayers, knows the desire of our hearts and works all things according to the counsel of His will. We don’t know if we will leave here with our girl taking all of her nutrition by mouth but tonight we are rejoicing, giving thanks and entrusting our hearts to Him believing He is good.

Prayer Requests

Please join us in praying for –

  • Davy’s growth, comfort and enjoyment in taking more volume of food by mouth. New textures and flavors can be scary, uncomfortable or difficult.
  • Wisdom for her speech therapist and care team.
  • God’s presence and comfort at OCH. Parents and kiddos are facing all types of challenges around us and it can still be really difficult and painful for many to be here.

Davy Takes Dallas!

I’m not sure if Dallas is ready for the hurricane of cuteness and personality that is Davy Elizabeth Frazier, but ready or not – she’s here!

We got Davy and Chelsea moved into Our Children’s House (OCH) yesterday. OCH is a hospital that, “offers an array of coordinated, comprehensive services for children with special health care needs. The program brings together a licensed pediatric hospital together with nine outpatient clinics.”

OCH states that they have one singular goal: “to return each child to his or her optimal level of health.” Ultimately, that’s why Davy is here. We desire for her to achieve an optimal level of health, specifically through feeding therapy that allows her to take all of her feeds by mouth. You can read more about OCH and the program here.

The First 24 Hours

I would describe day one as “full” to highlight my skills in understatement. We moved into a temporary room around 11am and then began the onslaught of meetings, conversations, and paper work. All necessary things, but things you get done with and wonder if you just got beat up and mugged by a pack of nurses. Do nurses run in packs? You bet they do. They are the salt of the earth, but don’t cross them.

If we’re continuing in the vein of understatement, the night was “eventful”. Davy doesn’t do overly well in new locations, especially new beds that look like comfy prison cells. We got Davy down around 9 while Chels and I debriefed the day. We crashed around 11, but had to maneuver around our room like ninjas.

Then, question, have you ever got onto an air mattress gracefully or quietly? No, of course you haven’t because no one has except the Dos Equis Most Interesting Man in the World. Also, every time we shifted on the air mattress during the night it sounded like we throwing a garbage bag into a full dumpster. Would Davy wake up every time? Yep. Would she cry like you had just slapped a little puppy? Yep. Again, the night was eventful.

The morning was slightly smoother if you don’t include the 6am Davy wake up call (and by wake up call I’m not talking soft piano music waking you up gracefully, but a blood curdling scream inducing fear that the pack of nurses were back to mug us) or the massive blowout she had right before her first appointment that we were late to due to said blowout.

The rest of the day went relatively smooth. After our first full day, we’ve  learned that each day will be extremely busy for Chels and Davy. They will go to five speech/feeding therapy appointments a day and at least two other therapy appointments for occupational and physical therapy. All of that plus four tube feeds, a nap (somewhere in there), daily vitals, and some play time squeezed in there just for some semblance of normalcy! On top of that, they are not able to leave the premises at all during the month long stay!

Many of you have asked how you can help and I wanted to point you to three ways you can support my girls.

How You Can Help

1. Give

I’ve had a lot of you ask me if you can send money to pay for a coffee for Chels, a meal or a toy/book for Davy girl. Instead of trying to collect money individually I put together a little fundraising site that will collect it all in one place. If you want to give financially you can do so at this link.

http://www.youcaring.com/davystrong

2. Encourage & Support 

Chelsea will need your encouragement over this month and I know just how you can do it! Chelsea is a words person. You can get her gifts all day and get a “oh, that’s nice,” but if you share a timely word it speaks to her on the heart level.

I would encourage you to send texts, FB messages, emails or you can send an encouragement to davyelizabethstrong@gmail.com. Disclaimer: Chels  won’t be able to respond to all messages, but would still love to hear from you.

3. Prayer

Last, but definitely not least, the best way to encourage Chels and Davy will be through prayer. I put together a little prayer calendar that you can find at the link below:

https://docs.google.com/spreadsheets/d/1LmjkeSlzw-sXkjGo0GceBhGpmtLpDErIxNN8Ohh7TZs/edit?usp=sharing

Put your name in the slot and pray for Chels + Davy as they come to your mind that day!

We want to thank you guys so much for continuing this journey that is nearing two years. I can’t wait to share with Davy, when she’s old enough to grasp, the global support group she had advocating for her through funds, encouragement and prayer. Until then, know that Chels and I are deeply appreciative of this community that has rallied around us both near and far. Love you guys.